Online Tools for PCOR Teams

Patient-Centered Outcomes Research (PCOR) engages patients as partners in research and focuses on questions and outcomes that are important to patients. The Online Engagement Guide, linked below left, describes platforms that PCOR teams can use to create an “in-person” feel when patients, stakeholders and research partners meet solely online. PCOR Case Study in CF, linked below right, describes how we successfully built PCOR capacity in the Cystic Fibrosis community. The case study serves as an illustration for other communities to build PCOR capacity.


Online Engagement Guide

This guide provides advice and resources for Patient Centered Outcomes Research (PCOR) team members who engage solely online. The guide outlines best practices for selecting types of platforms. We describe lessons learned and tips to maintaining authentic PCOR collaborations when interacting solely online.

Go to Guide


PCOR Case Study in Cystic Fibrosis

This case study describes how we built PCOR capacity in the Cystic Fibrosis (CF) community. This page contains (1) webinar PCOR training presentations, and (2) PCOR training manual for researchers in academic institutions on how to successfully engage patients as equal partners on research teams.

Go to Case Study