Guide for Online PCOR Engagement
Traditional Patient-Centered Outcomes Research (PCOR) teams use live, in-person meetings and interactions between researchers and patients to authentically engage and collaborate. However, in the era of COVID-19, with universal mask wearing and government stay-at-home orders, PCOR teams now need to adapt to this environment and act quickly to initiate meaningful virtual engagement.
PCOR team members are typically spread across institutional and geographical boundaries, and thus face technical challenges to transitioning to online collaboration. Additionally, because there is a wide range of platform options, teams need to carefully vet platforms in advance to eliminate a potentially lengthy trial and error phase.
Our team within the Cystic Fibrosis Sexual & Reproductive Health Collaborative (CFReSHC) has always had to engage in remote PCOR because people with cystic fibrosis (CF) already practice strict social distancing in their personal lives, to avoid passing dangerous infections to one another.. We hope our experiences and work in this area can help other teams transition to online collaboration in the era of COVID-19. Based on our own experiences as well as those of other research and community-engaged teams, we developed this Guide for online collaboration of PCOR teams.
While not every platform will appeal to every team member, it is crucial to find platform(s) which can best meet the needs of the team overall, so that authentic engagement can continue during the current pandemic. Accordingly, we offer this Guide for Online PCOR Engagement to provide PCOR teams with a thoughtful summary of several types of online platforms and a discussion about what to consider when selecting platforms for inclusive engagement.
We encourage you to disseminate this Guide to other teams who engage with patients and/or other stakeholders. Additionally, we gratefully welcome your feedback about how to improve this Guide. If you would like to provide feedback please share your thoughts or questions using the form below or by emailing us at firstname.lastname@example.org.
DOWNLOAD THE USER GUIDE
This work is funded by the Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (10569-UWash).