PCOR online and in CF

The Cystic Fibrosis (CF) community has been engaging online long before the rest of the world joined us during Covid-19 due to cross infection risk. This website contains resources for Patient Centered Outcomes Research (PCOR) teams looking to engage online as well as CF researchers, health care providers, and community members to learn about PCOR.


Online Engagement Manual

Access our PCOR team online engagement manual, for any PCOR team that is struggling to determine which online platforms to use to engage online during and after the Covid-19 pandemic.

Go to Manual


PCOR Webinar Presentations

Access to PDFs from our CF PCOR training webinar series from 2019

Go to Presentations


PCOR Training Manual

Access to PDFs of our PCOR training manual for healthcare providers and researchers.

Go to Training Manual