{"id":42,"date":"2021-02-04T16:17:03","date_gmt":"2021-02-04T16:17:03","guid":{"rendered":"https:\/\/familymedicine.uw.edu\/pcor-guide\/?page_id=42"},"modified":"2026-03-05T20:45:08","modified_gmt":"2026-03-05T20:45:08","slug":"about-us","status":"publish","type":"page","link":"https:\/\/familymedicine.uw.edu\/pcor-guide\/about-us\/","title":{"rendered":"ABOUT US"},"content":{"rendered":"\n
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This website was created through a collaboration between the University of Washington Department of Family Medicine and the Cystic Fibrosis Reproductive and Sexual Health Collaborative.\u200b<\/span><\/p>\n\n\t\t<\/div>\n\t<\/div>\n\t\n\t\n

Cystic Fibrosis is a rare, genetic disease that affects about 30,000 people in the United States and 70,000 people world-wide. Cystic Fibrosis is a multi-system disease that primarily affects the lungs with frequent infections. Because people with Cystic Fibrosis can pass their lung infections to one another, they have been engaging online long before the rest of the world joined them during the COVID-19 pandemic.<\/p>\n

The Workspace for Online Patient Engagement in Research<\/strong>\u00a0website was coordinated by the University of Washington Department of Family Medicine\u2019s Dr. Emily Godfrey (Project Lead) and the team members listed below. The Workspace for Online Patient Engagement in Research<\/strong> was created to help bring the historical knowledge of online engagement of those with Cystic Fibrosis to all patient-engaged teams interacting solely online. We also built patient-centered outcomes research (PCOR) capacity in the Cystic Fibrosis community. We share our training materials as an illustration for other PCOR teams to use.<\/p>\n\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\n\t\n\n\t

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Published Articles<\/h3>\n